At diagnosis I felt like I had been involuntarily picked up and placed on a completely different path in life – one that felt unfamiliar, uncomfortable, and uncertain. I so desperately wanted to be back on my previous path in life. One that was more certain, comfortable and carefree, so I tried my best to ignore it all. After muddling through for a long time, I soon realised learning to navigate this new path was the only way to move forward in life.

That was 22 years ago now and now I can confidently say I am a whole lot better at navigating this path I never chose. In Myositis Empower Hour 2023, I had the lovely opportunity to share and reflect on many aspects of my journey with myositis alongside some of my good friends from all around the world who are also navigating life with myositis.